Handouts and Links

FNSD/FND | Sleep | PANS/PANDAS | OCD | Anxiety | Autism | Tic Disorders

Any information obtained from this page should be used in conjunction with professional care in order to be better informed. Any information below is not intended as a substitute for professional medical advice but rather for your informational gathering. This will hopefully allow for better participation in treatment as well as involvement in the care of yourself and/or for your family member.

Functional Neurological Symptom Disorder (FNSD)

FNSD - General

• Functional Neurological Disorder in Children and Adolescents: A Parent Guide (InfoAbout Kids)

• FNSD - Stanford Clinic Handout

• FND National Institute of Neurological Disorders and Stroke

• Pediatric Functional Neurologic Symptoms (book chapter)

• Functional Somatic Symptoms in Children and Adolescents (open access textbook)

Nonepileptic Seizures

• Epileptic vs. Nonepileptic Seizure Comparison Table

• Non-epileptic Events - Children’s Mercy Kansas City

Functional Movement Disorder

• Functional Movement Disorder - Child Neurology Foundation

Support and Other Informational Websites

• FND Hope

• FND Society

Sleep

• National Sleep Foundation - Sleep Duration Recommendations by Age

• Bedtime Pass (for children who go to parent(s) room in the middle of the night)

• Insomnia

• Nightmares

• Night/sleep Terrors

• Sleepwalking

PANS/PANDAS

General Information

• Complete Guide (Child Mind)

• Stanford Clinic

• Pediatric OCD vs OC Symptoms in PANDAS/PANS (from Murphy, Gerardi, & Leckman, 2014; Dr. Bastien [formerly Gerardi] is 2nd author)

• Peer-Reviewed Publications (List from Stanford Medicine)

Evidence-based Treatment Guidelines

• PANS/PANDAS Treatment Guidelines (published in the Journal of Child and Adolescent Psychopharmacology, 2017)

• Treatment: Three-Pronged Approach

The Role of CBT, CBIT, and PMT in PANS/PANDAS

• Cognitive Behavioral Therapy - PANDAS Physicians Network

• Research Consortium Statement: Thienemann, Murphy, Leckman, et al., 2017

Food Refusal in PANS/PANDAS

• Toufexis, Hommer, Gerardi, et al., 2015 (Dr. Bastien, former last name Gerardi, is the third author on this peer-reviewed publication)

Support and Other Informational Websites

• PANDAS Physicians Network

• PANDAS Network

• Northwest PANDAS/PANS Network

• Aspire

Obsessive-Compulsive Disorder (OCD)

General Information

• Signs and Symptoms of Pediatric OCD (IOCDF)

• American Academy of Child and Adolescent Psychiatry - OCD Resource Center

• How to Help Your Child: A Parent’s Guide to OCD

OCD Treatment: Exposure Response Prevention (ERP)

• About ERP for OCD (IOCDF)

• Video about ERP

OCD and Autism

• IOCDF: OCD and Autism

• IOCDF: Expert Opinions - Treatments for OCD Comorbid with ASD

Reducing Parental Accommodations

• Information for Family: Stop Accommodating OCD (Beyond OCD)

• Family Accommodation in OCD (Yale)

• The Role of Family Accommodation in OCD (ADAA)

Anxiety

General Information

• American Academy of Child and Adolescent Psychiatry: Anxiety Information for Families

• AACAP Anxiety Resource Center

Anxiety in Children

• Anxiety in Primary School-Aged Children - The Royal Children’s Hospital, Melbourne

• What Does Anxiety Look Like in Children

• Video for Children to Explain Anxiety

Anxiety in Teens

• Anxiety and Stress in Teens - Johns Hopkins All Children’s Hospital

• How Anxiety Affects Teens

Anxiety Treatment: Exposure-Based CBT

• Behavioral Treatment for Anxiety (Child Mind)

• Exposure for Children with Anxiety: Helping Children Act in Brave Ways (Developing Minds, Australia)

Information on Specific Types of Anxiety

• Social Anxiety Information

Websites

• Anxiety Canada

• Anxiety & Depression Association of America

Autism

Home Life

• Wandering: Tips on How to Prevent

• Wandering Toolkit

• Safety Guide (146-page document on safety in different situations)

• Teaching Autistic Youth about Safety

Pathological Demand Avoidance (PDA)

• PDA in Kids (Child Mind Institute)

• Demand Avoidance (National Autistic Society, UK)

Medication Information

• American Academy of Child and Adolescent Psychiatry: Autism Spectrum Disorder Parents’ Medication Guide

• American Academy of Child and Adolescent Psychiatry: ADHD in Youth with ASD Parents’ Medication Guide

Family Members

• Guide to Supporting Siblings

• Teen Siblings

• Young Siblings

Tic Disorders

Comprehensive Behavioral Intervention for Tics (CBIT)

• CBIT Brochure

Websites

• Tourette Association of America